If You Are Going To The CJD Family Conference

If you are going to the CJD Family Conference and interested in helping me get info about it back to the masses, please e-mail me. (Hotwords AT mac dot com).

I'm looking for people to interview about their experience at the family conference, what you learned there, who you met, etc. You can be my correspondent and I'll be making a podcast out of all the audio...if I get some participation. So if you are interested, let me know. I can't make it to the conference this year, but I would still like to support it and be there "in spirit."

I am definitely NOT attending the conference next month

The Bad News:

It's going to be too much of a financial burden to attend the conference next month for me, especially with Boston University's expensive tuition due. (More on that in another blog, but it's impossible to get much finaid in my program so it's all out of pocket). I seemingly can't stray far from the chiropractor these days either, which is also another story which some of you may know.

The Good News:

I don't really feel I have to attend the conference in order to make a difference. Though I'd really love to meet everyone in person, especially more E200K people, and fCJD families in general. I'm going to continue doing my thing from Phoenix for this year...and will again try for next year's family conference.