I am desensitized to this madness.

I guess I no longer realize what a horrific disease CJD is. I'm a couple years removed from the experience and I've definitely moved on with my life. I do what I can for the cause of finding a cure whenever I have some free time, I blog, I speak, I help journalists, but I don't have time to do the kinds of things I'd like to do.

Tonight I was reminded how terrifying this disease is and how little the "normal people" know about it. I say "normal" meaning those who have yet to hear of CJD. A coworker and I were swapping stories about losing our parents. I was telling my buddy about identifying my mother's body post-autopsy after it was returned from New Mexico -- the nearest place where I could find someone to do her autopsy. We live in Phoenix. I told him how her body bag was marked "biohazard" in big black Sharpie pen letters. It blew his mind. I forgot this impact these stories have. They really need to be told more often to anyone who wants to listen.

Ouch. Over A Month Since My Last Post.

Ok, I do have big ideas for the blog backing up until I get some free time. That will likely get worked on during my Boston University summer break, which cannot come soon enough! So bear with me, more is to come, I promise.

I got my invite to the CJD Foundation Family Conference in July. I swear, this year I have to make it out there. Even if I'm in school because that's the meaning of attending college online.

I almost have a better excuse for not posting -- my weekend car accident. I was very lucky; after blowing out a tire going 65 mph on the 101 in the fast lane, I ended up with mere scratches. I'm also keeping my chiropractor's office and insurance company quite busy, not to mention anyone I know with a connection to cars I may want to think about purchasing. The car, a 1999 Ford Mustang, is a total loss.

Watch this spot for more news on my future car. More importantly, watch for more info about CJD soon!