I'm starting a new website and a new blog dedicated to one very tailored subject -- finding the cure for CJD. Read and comment
on the new blog.
I elude on the new blog to the fact that I have purchased the domain CURECJD.com. More to come on that later... Right now, I'll start with the blog. The plan right now is to post links to new info on who is finding the cure for CJD.
If you've read CJD Talk for a while, you know I come from a long line of genetic cases. How long, I am not sure. Since this is the Internet, I'm going to post some info right now I just hope someone will eventually find by Google search someday. I have tried to look online for relatives of Walter Zadzielka before and have come up empty. I did find a Vicki Lovett had posted something online somewhere years ago trying to find autopsy info on Walter Zadzielka...or is it Zadzeilka, or is it Zadel? I e-mailed her but the address no longer worked. Ms. Lovett, I have no info on Walter's autopsy. But he was my mother's uncle.
My mother came from a long line of Polish Catholics. Her family was huge and from Ohio. My mother used to tell me she had 100 cousins. There's a huge potential for many more genetic cases of CJD right there.
So if you happen upon this blog and you are related to anyone whose last name is Zadel, you may be a relative. If you are, the genetic mutation is E200K. That is the only autopsy info you would have gotten off of any Zadel autopsy. Feel free to get in touch with me, or you don't have to. It's personal; I understand.
CJD is a death sentence, but it shouldn't be. So since my deal in life is genetics I honestly don't care too much about the beef/vCJD side of things. It's horrible, yes. I'm not taking anything away from that. But I feel like I need to get a move on here if I want to see my own grandchildren someday. My mother died at age 56 and I'm 27 now, hence my extreme interest in focusing on the cure.
At the moment, the cure seems to be exploring something like PPS. It is no cure today in my opinion, but it's all we've got. There are other things being researched, and I'd like to make sure people know about those items too.
So now you know that finding the CURE for CJD is my interest and you also know why. Am I a carrier? I don't know. I won't get tested. Whether I carry it or not, the cure is still important to me. The cure is the only answer whether beef is in the equation or not. CJD is in the blood supply. It's not going away. And what if there is another wave? What if we can cure the animals first? What if we can only cure one mutation of CJD at first?
This is what the new blog
will be about. Feedback welcome.
Labels: CJD CURE, cure, CURE CJD, E200K, fCJD, genetics, Zadel