I'm very excited!

Tomorrow night, two CJD families will be getting together and meeting for the first time here in Scottsdale, Arizona. That would be my family and that of Terry Schwan. I lost a parent, Terry lost a child. I can't wait to swap stories. I also can't wait for my dad to see - live and in person - other people like us. He hasn't delved into meeting others and learning about CJD as much as I have. I'd say he's vaguely interested in the details at best. I guess that is how I take after my mother; I have to know everything about the disease. I need to know everything there is to know about what killed my mother. She was like that. She always wanted to know the facts about everything so she could tell everyone else about it. I bet she would have made a great journalist!