Hope from Pentosan Polysulphate, or PPS

Martin Luther King once said all that's done in the world is done by hope and that is certainly the case with Pentosan Polysulphate, or PPS. Take for instance the story of Don Simms, a father who wouldn't take "no" for an answer when his teen son fell ill with CJD in the UK. Don fought to make sure Jonathan could receive PPS years ago and Jonathan is still alive today.

All kinds of conflicting research exists today about PPS. Does it work or doesn't it? And Jonathan Simms may be alive, but what is his quality of life? That's a heavily guarded secret to this day, one where very little information makes it to the public and that likely only happens at the yearly CJD Family Conference in DC.

I know if I started showing CJD symptoms today, I would want to receive PPS. I'm young enough that I want a chance. If noting else, it would at least keep me alive until the cure comes; at least that is one of the fantasies I have.

The CJD Foundation is pushing for PPS trails here in the U.S. and I have to agree it's the best thing we can do.