CJD is a disease caused by a misfolding protein, called a prion. (PREE-on) Prion diseases are a group of rare and fatal brain diseases which occur in both humans and animals. In humans, it is known as CJD. Cows get BSE, which stands for bovine spongiform encephalopathy. Deer and elk contract CWD, or chronic wasting disease. There is no cure or clinical diagnosis for CJD. There is no cure for any of the diseases in the prion family.

Wednesday, January 24, 2007

More CJD legal news

This is a nice example of things going right. CJD needs to be reportable in every state so that we can accurately track the disease. Since CJD isn’t yet reportable in all 50 states here in America, we cannot accurately tell anyone how many people are really dying of this disease. As the article also points out, sometimes doctors aren’t well trained and miss it. They misdiagnose CJD as something else. I have noticed this is especially true in smaller cities – not so here in Phoenix where we are lucky enough to have Barrow Neurological Institute.

The link again: WTHR, Indiana

And a link to Indiana Representative David Orentlicher: Send him a note to say thanks and give encouragement.

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