CJD is a disease caused by a misfolding protein, called a prion. (PREE-on) Prion diseases are a group of rare and fatal brain diseases which occur in both humans and animals. In humans, it is known as CJD. Cows get BSE, which stands for bovine spongiform encephalopathy. Deer and elk contract CWD, or chronic wasting disease. There is no cure or clinical diagnosis for CJD. There is no cure for any of the diseases in the prion family.

Sunday, November 05, 2006

What's new

I haven't posted in 34 days! I've been busy moving and not feeling well most of the time, so I'm way behind on stuff like this. I was supposed to speak at Barrow Neurological Institute last month on behalf of the CJD Foundation. But there was a last minute scheduling conflict for our CDC doctor, so the morning of CME credit for the physicians has been pushed back to January 2007. That is fine with me at the moment as free time when I feel well is in short supply.

Meanwhile, I am happy to report our CJD Support group on Myspace is slowly taking off. There have been a couple new members lately to join up, so that's nice. I figure MySpace is just another good way to meet others like me and to keep networking. Anything to raise awareness of CJD and to direct people to the help they are seeking!

I just wish our members would post and get some communication going! Here's the MySpace group. If you're into MySpace, stop in and join up, introduce yourself and we can get people talking.

That's always the goal -- CJD Talk!

0 Comments:

Post a Comment

<< Home