CJD is a disease caused by a misfolding protein, called a prion. (PREE-on) Prion diseases are a group of rare and fatal brain diseases which occur in both humans and animals. In humans, it is known as CJD. Cows get BSE, which stands for bovine spongiform encephalopathy. Deer and elk contract CWD, or chronic wasting disease. There is no cure or clinical diagnosis for CJD. There is no cure for any of the diseases in the prion family.

Friday, November 10, 2006

Today marks two years since my mom died.

I can't even cry. All I can think is that I wish we could have done better for her. I wish we could have used a simple diagnostic test to tell her what was wrong with her. I wish we could have been able to do that to save time, aggravation, fear, stress and helplessness. I wish we could have explained to her that she was dying and how. I wish we could have exchanged proper goodbyes.

But we couldn't. And that's CJD for you.

I still don't have a lot of answers and that is what is on my mind the most today.

R.I.P. Phyllis Larson, 11-10-04

posted by Heather Larson at Friday, November 10, 2006

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